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Hum. Reprod. Advance Access originally published online on November 18, 2004
Human Reproduction 2005 20(1):19-34; doi:10.1093/humrep/deh552
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Human Reproduction vol. 20 no. 1 © European Society of Human Reproduction and Embryology 2004; all rights reserved

ESHRE PAGES

ESHRE PGD Consortium data collection IV: May–December 2001

K. Sermon1,8, C. Moutou2, J. Harper3, J. Geraedts4, P. Scriven5, L. Wilton6, M.C. Magli7, A. Michiels1, S. Viville2 and C. De Die4

1 Centre for Medical Genetics, University Hospital and Medical School of the Dutch-speaking Brussels Free University (Vrije Universiteit Brussel, VUB), Laarbeeklaan 101, 1090 Brussels, Belgium, 2 Service de la Biologie de la Reproduction, SIHCUS-CMCO, 19, Rue Louis Pasteur, BP120, 67303 Schiltigheim, France, 3 Department of Obstetrics and Gynaecology, University College Medical School, 86–96 Chenies Mews, London WC1E 6HX, 4 PGD working group Maastricht, Department of Clinical Genetics, University Hospital Maastricht, PO Box 5800, 6202 AZ Maastricht, The Netherlands, 5 Department of Cytogenetics, and Center for Preimplantation Genetic Diagnosis, Guy's and St Thomas' NHS Trust, Guy's Hospital, St Thomas Street, London SE1 9RT, UK, 6 Melbourne IVF, 320 Victoria Parade, 3002 East Melbourne, Victoria, Australia and 7 Day Surgery Clinic, SISMER, Via Mazzini, 12, 40137 Bologna, Italy

8 To whom correspondence should be addressed

The ESHRE PGD Consortium was formed in 1997 to survey the practice of preimplantation genetic diagnosis (PGD). Since then, three reports have been published giving an overview on PGD from an ever-increasing number of centres and reporting on an increasing number of PGD cycles and pregnancies and babies born after PGD. After these initial influential publications, important shortcomings were identified primarily on the method of data collection, i.e. with Excel spreadsheets, and in the timing of the collection (cycles were collected in a different time frame from pregnancies and babies, making the follow-up of cycles very difficult). This is why the Steering Committee has made a major investment in developing and implementing a new database in FileMaker Pro 6. It was also decided that cycles would be collected from one calendar year, as well as the pregnancies and babies ensuing from that particular calendar year. This gave us the opportunity to take a closer look at the data collected earlier, and to attempt to improve their quality. This is a report on the corrected data from the first three data collections (I–III) as well as the result of the last data collection (IV) that was completely carried out using the new database.

Key words: data collection/ESHRE/PGD


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