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Hum. Reprod. Advance Access published online on March 11, 2009

Human Reproduction, doi:10.1093/humrep/dep054
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© The Author 2009. Published by Oxford University Press on behalf of the European Society of Human Reproduction and Embryology. All rights reserved. For Permissions, please email: journals.permissions@oxfordjournals.org

Opinion

Providing preimplantation genetic diagnosis in the United Kingdom, The Netherlands and Germany: a comparative in-depth analysis of health-care access

Erik Aarden1, Ine Van Hoyweghen, Rein Vos and Klasien Horstam

Department of Health, Ethics, and Society, Maastricht University, PO Box 616, Maastricht 6200 MD, The Netherlands

1 Correspondence address. E-mail: e.aarden{at}hes.unimaas.nl

In recent years, preimplantation genetic diagnosis (PGD) has developed into a routine diagnostic procedure in health care. Although during this process, several initiatives have been employed to regulate the procedure, access to PGD may be hampered by the diversity in health-care arrangements or therapeutic cultures in different countries. This article demonstrates how PGD provision practices depend on much more than regulation alone, by providing an in-depth comparative analysis of the provision of PGD in Britain, the Netherlands and Germany. In analysing regulation, organization, selection of indications, and mechanisms and criteria for reimbursement, differences between these countries can be identified. This is important, since differences in PGD provision can have enormous consequences for the access of individual patients in different countries. Somewhat paradoxically, this article concludes that even though differences in access do have serious consequences, they also serve the establishment of PGD. Developing access to PGD in national ‘therapeutic cultures’ can contribute to making PGD routine health care in a way that may not be achievable by harmonizing regulation.

Key words: preimplantation genetic diagnosis/health-care provision/access/policy/comparative analysis


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